top of page

Mark Hehir

Author . Photographer . Disability Advocate

IMG_1156 copy.jpeg

   During my early years, I didn’t know that I had a form of muscular dystrophy called Rigid Spine Syndrome. I attributed my weak muscles and thin build to having a fast metabolism. In July 1996, my disease had progressed to where I started using a wheelchair and breathing on a ventilator. Needing 24/7 care, I started living with my parents. Thus began, what I call, my second life.


My Words Are My Own

bottom of page