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Mark Hehir

Author . Photographer . Disability Advocate

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   During my early years, I didn’t know that I had a form of muscular dystrophy called Rigid Spine Syndrome. I attributed my weak muscles and thin build to having a fast metabolism. In July 1996, my disease had progressed to where I started using a wheelchair and breathing on a ventilator. Needing 24/7 care, I started living with my parents. Thus began, what I call, my second life.

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